NEW NICE GUIDANCE PUBLISHED - Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education

This guideline covers support for disabled children and young people with severe complex needs, from birth to 25 years. It aims to encourage education, health and social care services to work together and provide more coordinated support to children and young people, and their families and carers.

Healthcare Services

This guideline is for:

  • Education, health and social care practitioners and service providers
  • Local authorities and health commissioners
  • Disabled children and young people with severe complex needs, their families and carers

This guideline focuses on delivering integrated education, health and social care services and is designed to help local authorities, health commissioners, and education, health and social care providers and practitioners to implement the special educational needs and disability (SEND) code of practice in order to improve outcomes for this group of children and young people and their families and carers.

The guideline includes recommendations on:

  • involving children, young people and their families in their care
  • communication and providing information

  • planning and running meetings with children and young people

  • identifying needs

  • education, health and care (EHC) needs assessment and EHC plans

  • support and training for parents and carers

  • social participation

  • transition

  • palliative and end of life care

  • environmental adaptations

  • employment

  • working culture

  • training for practitioners

  • service organisation

  • joint working and integrated support

  • joint commissioning

The full guideline and supporting documents can be found on the NICE website, together with an Easy Read version for children and young people.

APCP is grateful to Jen Chesterton who collated and submitted comments on behalf of APCP members on the the draft guideline.

PUTTING GUIDANCE INTO PRACTICE

If you have a special interest or expertise in this area, and would like to write a short review for APCP about this guidance or present a webinar to explain and discuss the recommendations and how they apply within paediatric physiotherapy, please contact nice@apcp.org.uk

 

 

 

 

 

 

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