Listed below are some articles, videos etc which may be helpful.
Please let us have your useful resources too and we can share here for the benefit of other families
Flexterity- With an array of easy-to-use resources, a new platform, FlexterityTM, has been launched to give parents and caregivers of babies and children with neuromuscular diseases (NMDs) access to additional support outside of their regular physiotherapy appointments.
Flexterity for Parents and Caregivers
Try B4 U Fly- provide information and advice for children and adults with disabilities who are thinking about travelling by air
Medication management for people with disabilities - this is from the USA but has some useful tips