What has happened recently in NICE?
New NICE guidance was published on 19 March 2024 on Meningitis (bacterial) and meningococcal septicaemia: recognition, diagnosis and management
This guideline includes the management of babies and children and long-term complications and follow-up for bacterial meningitis and meningococcal disease. This includes the initial acute management on admission and through to discharge and planning future intervention. To read it in full, see https://www.nice.org.uk/guidance/ng240
Development of new guidance in the committee stage
a. Over Weight and Obesity Management – https://www.nice.org.uk/guidance/indevelopment/gid-ng10182 This guideline includes management in children and young people. Final publication date of the guidance is to be confirmed.
b. Rehabilitation for Chronic Neurological Disorders Including Traumatic Brain Injury. Includes children and young people. Consultation on the draft guidance has been postponed and publication of the final guidance document is due on 15 January 2025. https://www.nice.org.uk/guidance/gid-ng10181/documents/final-scope
c. Epilepsy – extraordinary review expected publication date is delayed and to be confirmed. This is to review Valproate prescribing in children and adults under 55 years. Publication date to be confirmed. https://www.nice.org.uk/guidance/indevelopment/gid-ng10181
Quality Standards in development
Quality standards explain give criteria against which a service and determine if they are implementing NICE guidance effectively. These standards along with the relevant NICE guidance can sometimes help to contribute to business cases for staff or equipment if that is the intervention being assessed.
a) Obesity: clinical assessment and management (QS update) The expected publication date is 11 December 2024. You can view information about the standards and the consultation here:
https://www.nice.org.uk/guidance/indevelopment/gid-qs10184
b) Meningitis (bacterial) and meningococcal disease update (QS update) The expected publication date is 4th December 2024. Documents can be accessed her: https://www.nice.org.uk/guidance/indevelopment/gid-qs10181
Dates of consultations and publication on new quality standards still to be confirmed.
a. School-based interventions: physical and mental health and wellbeing promotion Consultation date to be confirmed as delayed due to Covid-19.
b. Children and young people with disabilities and severe complex needs: integrated health and social care support Awaiting development
c. Infant, children and young people's experience of health care Awaiting development
NICE UPDATE May 2023
APCP's quarterly email bulletin with the latest news from NICE.
NEW NICE QUALITY STANDARD PUBLISHED - Fetal alcohol spectrum disorder (QS204)
APCP NEWS - 16 March 2022
This quality standard covers assessing and diagnosing fetal alcohol spectrum disorder (FASD) in children and young people. It also covers support during pregnancy to prevent FASD. It describes high-quality care in priority areas for improvement.
NEW NICE GUIDANCE PUBLISHED - Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education (NG213)
APCP NEWS - 09 March 2022
This guideline covers support for disabled children and young people with severe complex needs, from birth to 25 years. It aims to encourage education, health and social care services to work together and provide more coordinated support to children and young people, and their families and carers.
Frist gene therapy for metachromatic leukodystrophy (MLD)
NICE News - 04 February 2022
Children with MLD will be able to benefit from a new one-off treatment under new NICE guidance.
APCP NICE UPDATE 2022 - Number 1 (1 February)
APCP's quarterly email bulletin with the latest news from NICE.
NEW NICE GUIDANCE PUBLISHED - Rehabilitation after traumatic injury (NG211)
APCP NEWS - 18 January 2022
This guideline covers complex rehabilitation needs after traumatic injury for all people, including children and young people.
NEW NICE GUIDANCE PUBLISHED - Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (NG206)
APCP NEWS - 5 November 2021
NICE ME/CFS guideline outlines steps for better diagnosis and management
YOUR OPINION MATTERS - Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education
APCP NEWS - 15 September 2022
The consultation on the new NICE draft guideline: Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education took place in August and September 2021.
NEW NICE GUIDANCE PUBLISHED - Babies, children and young people's experience of healthcare (NG204)
APCP NEWS - 25 August 2021
New guideline from NICE recommends ensuring children and young people are fully informed about their health so that they are empowered to take an active role in their healthcare
