The APCP Neuromuscular Committee currently has a number of committee vacancies and invites APCP members with at least 3-5 years experience of working with children and young people with neuromuscular disorders to submit a nomination - click here for further information.
CURRENT COMMITTEE MEMBERS
Neuromuscular Committee Representative
Lindsey trained in Leeds where she has worked since qualification in 1987. She specialised in paediatrics early in her career and for the last 15 years has worked as part of the Leeds Regional Paediatric Neuromuscular Team. She provides clinical lead for therapists across the region in assessment and disease management, provides support and training in health and education settings and in early 2016 commenced a ESP role leading neuromuscular clinics.
She is involved in research studies which are working to standardise disease management internationally, currently, FOR-DMD and in the last year was part of the HydroDMD pilot study
Lindsey had been a member of the APCP Neuromuscular Committee for a number of years and took on the role of Representative to National Committee in 2014.
Lianne graduated in 2007 from the University of Southampton. She specialised in paediatrics in 2010 initially working in the community in both Essex and Portsmouth and then moved to Great Ormond Street Hospital in 2012. She completed a rotation in neuromuscular in 2012 before specialising in this area in 2013 part time as well as also working part time in Haematology and Oncology.
Sarah is a specialist physiotherapist working in the Neuromuscular Team at the Royal Hospital for Children, Glasgow. She graduated from Glasgow Caledonian University in 2006, worked in a District General Hospital for three years and moved into paediatrics in 2009. The Neuromuscular physiotherapist post was new to RHC Glasgow and since joining the service in 2011, Sarah has worked to develop the role and in addition to clinical work is contributing to research.
She joined the APCP Neuromuscular Committee in January 2016.
Clare graduated in Edinburgh in 1982 and has worked at the Royal Hospital for Sick Children since 1985. She’s been community based for over 20 years and started the new post of Neuromuscular Specialist in August 2016. She provides clinical lead for the Neuromuscular Service at RHSC and in the community in the Lothian’s and works with colleagues in Fife and the Scottish Borders. She’s on the Steering and Paediatric Sub-Group of the Scottish Muscle Network and links with her physiotherapy counterparts in Glasgow and Highland region to promote best practise in the treatment of children and young people with neuromuscular conditions in Scotland.
Kate is based in Swansea and has worked as the neuromuscular physiotherapist for the South West Wales area for the last 5 years. Her role is part of a neuromuscular team including another neuromuscular physiotherapist who covers South East Wales, a Family Care Officer, Paediatric Neurologist and transitional physiotherapist working with 16-25 year olds.
Kate works part time as a neuromuscular physiotherapist and part time in community paediatrics. Combining the two jobs allow her to assess in the clinic and then follow on physiotherapy by treating the neuromuscular patients in the community (in their homes, schools or children’s centre).
Working for Cardiff University, Kate teaches the Neuromuscular module for Year 2 physiotherapy students. She finds this good but challenging, as it pushes her out of her ‘comfort zone’!
Anna initially specialised in paediatrics and neonates and gained a PhD in predicting outcomes in preterm infants. Since 2009 she has worked for the Newcastle Muscle Centre where she is a consultant research physiotherapist involved in clinical and research activity for children and adults. Prior to this she was Network Coordinator for Smartnet, a UK based project on the collection of clinical measures for SMA. Anna has published several articles on the development of outcome measures for use in various neuromuscular disorders (NMD’s) including duchenne muscular dystrophy (DMD) and spinal muscular atrophy (SMA). These have incorporated the use of modern psychometrics. Anna is a consultant for various pharmaceutical companies specifically relating to clinical evaluation. She is involved in training clinical evaluators for clinical trials both in DMD, SMA and other NMD’s and in the ongoing development of clinically relevant measures for use in neuromuscular trials.
Bethan qualified form Bristol UWE in 2003 and has since worked for Cardiff & Vale UHB. She has worked in most areas of paediatric physiotherapy across the acute and community service. She specialised into acute neuro rehab and neuromuscular in 2008 and following a period of maternity leave, returned to just focus on neuromuscular services.
Bethan is based in The Children's Hospital for Wales, working as a NM specialist for South East Wales. Within her role, she is part of the NM clinics at the Children’s Hospital as well as outreach and school based clinics. Her role allows her to manage part of her caseload within the community as well as linking with the acute based services when NM patients are acutely admitted or have planned surgery. Bethan undertakes NM teaching for paediatric physiotherapists in South East Wales and student physiotherapists at Cardiff University. She is part of the Welsh Neuromuscular Network, working with consultants and care advisors across adult and paediatric services, to help develop and improve the NM services in Wales.
Bethan joined the APCP Neuromuscular Committee in January 2018.
Rosanna works as an advanced neuro-physiotherapist at Birmingham Children's Hospital with a special interest in neuromuscular patients (particularly those who require long term ventilation). She has had the opportunity to work with Marion Main at Hammersmith hospital where she learnt all she knows now! She carries out regular neuromuscular clinics at Birmingham Children’s Hospital as well as managing the patients when they are admitted to the wards.
Hayley joined the Oxford Paediatric Neuromuscular Service in October 2013, following several years working in community paediatric physiotherapy in both Cambridgeshire and Oxfordshire.
In her role as Specialist Neuromuscular Physiotherapist she sees a cohort of over 220 children with neuromuscular conditions, who access Oxford as their tertiary centre for neuromuscular and respiratory care. She supports the Oxford diagnosis specific multidisciplinary clinics, which run on a weekly basis and also provides outreach support to general neurology clinics and offers community and hospital visits as required. Within her role she supports patients in their orthopaedic and respiratory management, offering input during planned and unplanned admissions and linking in with other members of the wider multidisciplinary team and community therapists.
Victoria qualified as a physiotherapist in 2003, completed band 5 rotations at Addenbrookes Hospital in Cambridge and then moved to the Teenage Cancer Trust at UCLH in 2005. In 2006 she secured a rotational band 6 post at Great Ormond Street Hospital in 2006, specialising in Neuromuscular Physiotherapy in 2009. In 2013 Victoria started her PhD at the Institute of Child Health 'developing adult and paediatric home based assessment to monitor fluctuations in symptoms of myasthenic conditions'.
Victoria is passionate about physiotherapy both clinical and academic with a special interest in neuromuscular conditions and most specifically myasthenia.