Committee vacancies will be advertised annually and so any members wishing to get more actively involved should look out for details of these or contact the committee to register their interest.
CURRENT COMMITTEE MEMBERS
Contact: nm@apcp.org.uk
Julie Burslem
Julie Burslem trained in Newcastle and qualified in 1997. She specialised in Paediatrics in 2000 initally working at the Children's Hospital in Sheffield and then moving to the North of Scotland working in community in 2002. In July 2016 she started a new part time post in addition to her community remit as a neuromuscular specialist providing the clinical lead for Neuromuscular Services in the North of Scotland covering Grampian,Tayside, Highland, Orkney and Shetland. linking with colleagues in each locality.
She is on the Steering and Paediatric subgroups of the Scottish Muscle Network and links with colleagues in Glasgow and Edinburgh to promote best practice across Scotland.
Evelin Milev
Evelin is a research paediatric physiotherapist in the neuromuscular team at Great Ormond Street Hospital and University College London. He graduated from the National Sport Academy Sofia in 2013 and then worked as a neuro paediatric physio. In 2015 he moved to London and took the role as a paediatric neuromuscular research physiotherapist at UCL. He completed his Masters of Paediatric Physiotherapy at University College London in 2020.
Evelin has participated in the design and completion of numerous clinical trials and natural history studies in Duchenne Muscular Dystrophy and Spinal Muscular Atrophy. He is currently the lead physiotherapist of a large natural history study in Charcot-Marie-Tooth (and other peripheral neuropathies) in children at GOSH.
He has a particular interest in translational research and physical activity in children with neuromuscular disorders.
Amy Wolfe
Amy graduated as a physiotherapist in 2015 from Cardiff University and completed her core band 5 rotations at the Heart of England NHS foundation trust in Birmingham. She specialised in paediatrics in 2016, initially working in general paediatrics the community at Sandwell and West Birmingham Hospitals trust and then at Birmingham Community Healthcare. Amy works at Great Ormond Street Hospital as a senior neuromuscular research physiotherapist and for University College London as the physiotherapy development lead for the NorthStar network for Duchenne Muscular Dystrophy.
She joined the APCP Neuromuscular Committee in September 2020
Joel Bowpitt
Sarah Gregson
Originally from Cork, Ireland, Sarah moved to Bristol in September 2000 to study physiotherapy at the University of the West of England. After qualifying in 2003, Sarah took up her first post at Hope Hospital in Salford until moving into paediatrics at Alder Hey Hospital, Liverpool in 2006. She worked across all acute and community paediatric specialities gaining an interest in Neurology. In 2012, Sarah started in the Neuromuscular team. In 2015, she completed an MRes in Health Science with distinction. Having gained a keen interest in research during her MRes studies, Sarah took the opportunity to take up a 2 year research secondment as part of the Alder Hey Neuromuscular team, in collaboration with Duchenne UK, and continues now to participate as a clinical evaluator in many DMD Studies as well as contributing to national audits such as North Star and leading with the SMA Reach study at the Alder Hey site. In 2021 Sarah became a qualified non-medical prescriber and in 2022 was appointment as a clinical specialist physiotherapist and clinical lead for the neuromuscular therapy team.
Louise Richardson
Sarah D'Urso
Sarah qualified as a physiotherapist from Sheffield Hallam University in 2010. She worked in Doncaster for several years before moving to Sheffield Children's Hospital. Here she worked across several specialties before joining the neuromuscular team in 2021. Sarah is passionate about sharing knowledge and working with physiotherapists to help deliver high quality care for children, young people and families with neuromuscular conditions.
She joined the APCP Neuromuscular Committee in 2022.
Dr Anne Mayhew
Anne joins us as a consultant Physiotherapist in Neuromuscular Disorders, working at the John Walton Muscular Research Centre (International Centre for Life, Newcastle Upon Tyne, NE1 3BZ + Consultant to Treat NMD for pod-nmd.org).
Anne is extremely experienced, with over 20 years working within NMD, 30 years in paediatrics, a PhD in Preterm Infants and extensively published in NMD.
Anne has been clinical base for many years in Newcastle JWMDRC – left Oct 2022, and with her current role, builds and creates content for pod-nmd.org – International website for education in NMD, with an associate honorary contract with Newcastle University.
Anne is a member of TACT – Treat NMD Advisory Committee for Therapeutic Trials and on the review panel for MDUK Research Grants.
Anne is one of the leaders in the field of NMD for management and assessment and creates many educational material too.
Anne is very much use to the APCP committee process and structure, having been a NMD member previously.