1st Cerebral Palsy Integrated Pathway UK Meeting

In 2019, Katie Kinch, CPIP Scotland Representative and one of the key players in the success of the roll out of CPIP across the UK, had a vision of creating a day where those involved with CPIP in the UK could mark 10 years since the 1st International Meeting on the Management of the Hip in Cerebral Palsy which was held in St George’s Hall. Liverpool in 2010.

The Network agreed this was a great opportunity to showcase the development and pace of the program since then and celebrate what has been achieved and we set about planning a day filled with quality speakers and content.

In March 2020, it became evident that this event would have to be postponed and later that year we acknowledged that the way to ensure this event could go ahead in 2021 was to go virtual. Thanks to the success of the APCP Zoom Webinars, we knew we had the technology and support to make this happen.

A lot of work went on behind the scenes to pull together an action-packed program reflecting the multidisciplinary nature of CPIP in collaboration with the British Academy of Childhood Disability (BACD) and the British Society for Children's Orthopaedic Surgery (BSCOS).  

The day was held on 18th June 2021 and was a huge success with over 370 delegates attending, some from overseas. It was introduced by Liz Gray, former Chair of APCP.

The purpose of the meeting was to examine the evidence, inform and update clinicians, share good practice, facilitate equity of care and identify areas for further research.

We were treated to presentations from a number of the Scottish CPIP Team including Laura Wiggins and Lesley Harper who were involved in the original ‘Train the Trainer’ as well as Scottish Orthopods Heather Read and Mark Gaston sharing results of research using the Scottish data.  Members of the current National Network gave a flavour of how the process has worked differently in their regions.

A big ‘crowd puller’ was the appearance of Gunnar Hagglund who presented a fantastic reflection on how the approach to Orthopaedic management has changed with the data that we have gained through CPIP.  I can certainly remember children being treated with ‘birthday’ surgery when I started by career in paediatrics 25 years ago. We were treated to a live presentation by Charlie Fairhurst who gave an insiders view of how CPIP has been supported by the CQUIN in NHS England and the hope this may lead to long term funding.

The number and range of high quality free papers curated by Guy Atherton and Rachel Rapson, illustrated a range of innovative practice highlighting the value of MDT clinics and joint working between radiographers and physiotherapists. They showed how data is being used to inform clinical decision making and how, with the increase in big data from standardized assessment that can be collected throughout the UK population, we have the potential to contribute to real change in the care provision and outcomes for children and young people with CP.  We heard about what the data can tell us about seeing children face to face rather than virtually, what the data can tell us about children who have undergone SDR and how the CP Hip Outcomes Project (CHOP) is looking at different approaches to Orthopaedic management using CPIP data to make sure the child has the right intervention at the right time.

There were opportunities for live Q and A with the invited speakers which was chaired by Steve Cooke and Hilary Finlay. The day was brought to a close by Rachel Rapson highlighting how the CPIP assessment can be used as an opportunity to discuss and gather data on participation and make every contact count to promote the value of physical activity.

A copy of the program, abstracts of the free papers and other poster presentations can be found on the CPIP UK website which has been developed by Steve Cooke and the National Network as resource for parents and professionals involved with CPIP.

https://www.cpipuk.org/june-18th-2021

If you are interested in representing your region on the CPIP National Network then please contact your regional rep. For further info on the CPIP National Network and to get in touch with your regional rep please see:

https://apcp.csp.org.uk/content/cpip-uk-national-network

Our AGM is planned for the week of the 19th October – date to be confirmed on the webpages.

A big thank you to all involved and to APCP and Kerry McGarrity for their support and advice.

A big thank you to Katie for her vision of this day and her infectious enthusiasm to drive this forward and make it happen.  Another fine example of the power of an army of volunteers. It certainly highlighted that there is a big thirst for knowledge about CPIP within the UK, Republic of Ireland and beyond. Thank you to our sponsors and to all who contributed to the day. Plans will be hatching to hold a ( hopefully) face to face event in the future.

Philippa Burgess – CPIP Wales Representative and APCP National Committee Representative.

 

 

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